Trace's Story

Nutrition for the Special Needs Child

Nutrition. It’s one of those important but vague words that really means very little to the human mind until one begins to break down the various facets of it to understand the body’s needs and what those building blocks of nutrition actually DO for the body. We know we need to have “good nutrition” and “ease body to function properly, but we don’t actually know what that means. And we have have no idea how nutritional supplements compliment a whole food based diet and improve our body’s ability to absorb nutrients from our food.

In the minds of most, “proper nutrition” sounds boring. It translates to “go on a diet.” On the plate of the majority of Americans, it means brown rice instead of white, whole wheat bread, no salt, low fat, and artificial sweeteners; yet still those types of food-pyramid-driven diets miss the mark terribly when aiming for a certain goal of lowering blood pressures and cholesterol levels or balancing blood sugars. This nation is perishing for lack of knowledge. The general populace has no idea the difference between simple and complex carbohydrates, the purpose of protein, why the brain needs healthy fats to function well, or that consuming pink sea salt can actually save the lives of those struggling with cardiovascular issues or migraines simply by replenishing critically deficient minerals. And most have never given a single thought toward how we can help the special needs population to thrive just a little bit better by providing their overly taxed bodies with real, nourishing food and targeted nutrition supplements.

I had never given this much thought until I became a special needs mom myself, and saw my son’s abilities begin to drastically change with a better diet. I cannot suggest that we can cure these disorders with food, but I do believe that we can change their lives in incredible ways just by implementing sound nutrition to enable their brains and bodies to function just a bit better.

Over the last several years of learning about the various aspects of nutrition, it has become apparent to me that while the vast majority of Americans suffer from severely deficient nutrition, the special needs population suffers even more. Often, their nutrition is unintentionally neglected in the name of survival. Of course, I am not criticizing special needs parents at all – after all, I am one! Being the parent or caregiver for a special needs individual is intense in ways that are unimaginable to the general population. The experience of having another human being completely dependent on you for their very existence, long beyond infancy, is especially taxing. There are so many day-to-day details to keep up with that add up to the utter exhaustion of the caretaker. Feeding these sweet souls often becomes a matter of survival. Fill the belly at the appropriate times with whatever we know will not be refused or rejected, and move along. I do it too. This is nothing to take offense over because I know that this doesn’t happen on purpose or with the intent of neglect. Please understand that this is NOT an attack. I am on your team, Super Hero Parent! I know it is just easier to feed them the things that we know go down easily and keep them happy for a while, so that we can focus on surviving under the weight of the day’s to do list.
Life is heavy with another person’s needs placed squarely on your shoulders. It’s just what we do to survive.

But even in a medical setting, these kids’ nutritional deficiencies are neglected. Children are given feeding tubes (out of necessity in most cases) because they can’t chew well enough or swallow safely, but then the primary offering in those g-tubes is formula. Why not real food? There is little to no guidance offered in the department of better diets. Parents are not being educated on what vital components like enzymes and trace minerals and healthy fats can do for their children’s overall health. It is as though, because these sweet kiddos were dealt a tough hand in life, that they are not worth being poured into with REAL nutrition. Do we really believe the lie that there is nothing more we can do to help these children have better quality of life?

Thankfully, long before my journey as a special needs parent began, I had already begun using Young Living Essential Oils in my home, and it just so happened that this same company had a huge variety of essential-oil-infused nutritional supplements. I already had a few of them in my home, but up until this time, I had not paid too much attention to those supplements much beyond trying the multivitamin and a juice product. Research and studies on Trace’s genetic disorder center around learning how to help the brain produce these protein and neurotransmitters, so as to create a medication that would help the body to bridge this gap. Obviously, such a medical advance could take a lifetime. So while we are waiting on this miracle cure for STXBP1, I began my own research on a more basic level. I have been busy learning how I can help to fill in these gaps with sound nutritional supplements to help my son to have the best chance possible at learning to use and control his own body.

My son Trace is a 2.5 year- old boy who already has an amazing story of God’s power and protection on his life. He is a happy and thriving, highly observant, very social, very sweet little boy and loves the interaction and attention of people around him. He has a rare genetic change on the STXBP1 gene on the 9th chromosome. There are fewer than 300 known, diagnosed cases in the world. This change does not have an associated syndrome but is classed as an epileptic disorder. It inhibits the body’s ability to produce and make use of certain protein amino acids, and affects the way the nerve synapses in the brain produce and process neurotransmitters, causing seizures, neurological disturbances, and developmental delays. Essentially, it short circuits communication between the brain and the child’s body. Trace has not had seizures since he was a newborn, but he does have some tremors and tics present, especially when he is happy or excited. He has global developmental delay and takes speech, occupational, and physical therapy three times a week. His progress over the last year has been substantial, and I am so amazed every day at the things God is doing in his life!

This is a story of a momma who wanted the best for her baby. Over the next few days I am going to share with you the things I discovered and the changes that have made huge differences in my child’s life. I am so excited to share our story, and the incredible difference Young Living has made in my family’s life. Stay tuned for the next few days as I share my ideas and his testimony.

(***These statements have not been evaluated by the FDA, and are not meant to diagnose, treat, or cure any illness, and should not replace the advice of your medical professional and health care providers. Please remember that YOU are in charge of your own life and wellness decisions! If you would like to learn more about Young Living Essential Oils or supplements, or for a personal wellness consultation to explore the supplements that could be useful in your own family’s life, please contact and follow me on Facebook at “Oily and Wise – Young Living with Lorna Miller, Independent Distributor.”)

To start your journey with Young Living and receive education and personal support from me and my amazing team, click here or send me an email

 

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s